Greetings from my corner of the map! I think I posted here a few years ago but could not remember my PW and user name (D'ja know chronic pain supposedly robs us of 10% of our brain annually? Given this... I shoulda been brain dead about a decade ago!)
OK, a short bio of my pathetic existence...
43, sloppily married, four kids (me da brain dead homeschool dad~UG!). I wrote a letter here that is under "Patients speak out" ("This is a war on people in pain"). I was crushed in a car accident 23 years ago when driving to work when another driver failed to stop and pulled onto the highway where I was driving. I t-boned him at 50mph. My heart stopped on impact but CPR saved my pointless life. My leg was mangled with the femur sticking right on out. Was air lifted to big regional trauma center where they did a "new" procedure that "saved" my leg. Oh, and started my heart when I "tried" to die again two more times {let me GO!!!} (lived with the crash cart outside of my room for a few days). I have nerve pain, neck and back pain, scar pain, muscle pain, pain pain, pain pain with pain... several pain syndromes... basically the disease of pain has become the ruler of my "life". I went for 18 years with NO medical help. Yeah, I deserve some of the bad stuff said about me I'm sure... 'cuz you know when pain goes with you... you make choices nobody can understand ('cept those who also have pain!). So, I AM a pain. Yup, even my dog does not like me any more!
Was a member and daily contributor to another pain community online... till one (volunteer) moderator took a dislike to me and started a vendetta of editing (sounds like a line from a Bobby Dillan song... "it wuuuuzz a vin-dit-AAA of ed-it-IIIINNNNNG and the man sto-ole awl of muy werrrrdz" I protested and pointed out the hypocrisy of a "pain advocacy" organization that gets funding from BIG PHARMA (and therefore DICTATES what members can say. Sheesh!) Anyway, it hurt and I have not been online in months. I AM a square peg and have never "fit" or belonged until at that place. I poured heart and soul into it... only to be called horrible names and accused of some bizzare things. Do you know what I did that was sooo terrible? I posted links at my old community to some of the excelent info here!! Boy am I glad to not go there. Yeah, and my pastor even hates me... as does my wife. Ahh, it really feels good to be me!
Enough sour grapes. I hope I can become a member of your community ( warts and all). I will follow the rules -- always do.
PS sorry 'bout the heavy sarcasm and unrestrained sniveling
best I can do right now
pariah
OK, a short bio of my pathetic existence...
43, sloppily married, four kids (me da brain dead homeschool dad~UG!). I wrote a letter here that is under "Patients speak out" ("This is a war on people in pain"). I was crushed in a car accident 23 years ago when driving to work when another driver failed to stop and pulled onto the highway where I was driving. I t-boned him at 50mph. My heart stopped on impact but CPR saved my pointless life. My leg was mangled with the femur sticking right on out. Was air lifted to big regional trauma center where they did a "new" procedure that "saved" my leg. Oh, and started my heart when I "tried" to die again two more times {let me GO!!!} (lived with the crash cart outside of my room for a few days). I have nerve pain, neck and back pain, scar pain, muscle pain, pain pain, pain pain with pain... several pain syndromes... basically the disease of pain has become the ruler of my "life". I went for 18 years with NO medical help. Yeah, I deserve some of the bad stuff said about me I'm sure... 'cuz you know when pain goes with you... you make choices nobody can understand ('cept those who also have pain!). So, I AM a pain. Yup, even my dog does not like me any more!
Was a member and daily contributor to another pain community online... till one (volunteer) moderator took a dislike to me and started a vendetta of editing (sounds like a line from a Bobby Dillan song... "it wuuuuzz a vin-dit-AAA of ed-it-IIIINNNNNG and the man sto-ole awl of muy werrrrdz" I protested and pointed out the hypocrisy of a "pain advocacy" organization that gets funding from BIG PHARMA (and therefore DICTATES what members can say. Sheesh!) Anyway, it hurt and I have not been online in months. I AM a square peg and have never "fit" or belonged until at that place. I poured heart and soul into it... only to be called horrible names and accused of some bizzare things. Do you know what I did that was sooo terrible? I posted links at my old community to some of the excelent info here!! Boy am I glad to not go there. Yeah, and my pastor even hates me... as does my wife. Ahh, it really feels good to be me!
Enough sour grapes. I hope I can become a member of your community ( warts and all). I will follow the rules -- always do.
PS sorry 'bout the heavy sarcasm and unrestrained sniveling
best I can do right now
pariah
to the forums! 
Given the sorry state of our health care system and the over-policing of our medicine, it's a wonder to me we don't have daily rants from most of our members.
Hi Pariah and welcome to the forum
. It has been rather slow lately and I'm not sure where alot of the members have gone to but we are all hoping they return soon.
a few years ago when everyone else basically dropped the ball so to speak with my care. Got the story of well there isnt anything else we can really do for you and you live too far away and we are specialists and your taking up too much of our time to just give meds to so gee how bout we take any help we have given you away and by the way have a great life cyassssssss.
. Pain effects every aspect of my life, and has robbed me of so much that I want to do with my fiance' and grandkids and the rest of my family and to make matters worse I am now basically the sole caretaker of my elderly mother and that is getting harder by the day,how can I continue to take care of her when I should have someone taking care of me most of the time? Ya it sucks but ya play it day by day and hope for the best and of course the DEA
to get off the backs of doctors who truly want to help but are so limited doing so.
more than a few minutes lol.
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